Blessings

We received a call from Dr. St. Hilaire himself.  He went over the MRI with the radiologist and found that the radiologist was correct!  While this is great news by itself, he followed it with even more amazing news.  Sophie does NOT need surgery at this time!!

Before I continue, I just want to thank everyone for your prayers and well wishes.  We truly believe that this was our miracle.  This is the first time I've experienced something so beautiful. We know that we had all of our friends and family behind us and we know that made all the difference.  We feel as if we got our lives back.  It is truly going to be an amazing holiday season.

The part of her skull that is missing isn't where we thought it was.  It is actually part of her left nasal bone that is absent.  While the CT scan showed a lesion, there is actually no lesion at all.  The lesion that they thought they saw was actually the missing part of her nasal bone. We still have lots of questions that need to be answered.  We have a follow-up appt. with Dr. St. Hilaire on Friday, November 30th to see where we go from here.  Will Sophie need surgery in the future to correct this?  Is this missing bone causing all of her facial assymetry.. Or was some of it caused by the "smushing" as they initially thought?  I will continue to update after this appointment!

When we first heard this news, we didn't know how to react.  It was almost as if we couldn't believe it because we were given so much information already about her surgery and recovery.  We are so thankful to our pediatrician because without him, we would have been waiting until December 7th to find out the results of the MRI.  These past few weeks have been very difficult and we are still confused.  We don't understand how we can be told something so bad, and after more extensive testing, be told that it's not nearly that bad, but we need to push those feelings aside and be thankful for this beautiful gift that we have been given without questioning it.

MRI results

We received the call we were waiting for!  Dr. St. Hilaire's office called last night.  The radiologist read the MRI as "normal".  Before we breathe a sigh of relief, I was told that Dr. St. Hilaire wants to sit down with the radiologist on Monday or Tuesday to go over the MRI because the CT scan and the MRI showed conflicting results.  While the MRI is more accurate most of the time, we still need to wait for final confirmation after Dr. St. Hilaire calls us back.

So what does this mean?  IF the MRI is correct, there is no communication between Sophie's brain tissue and the "lesion"!  That is amazing news because that would mean we would no longer need to see Dr. Greene, the neurologist.  While Sophie's surgery would still be a big deal, it would be much less complicated.  I feel that this is the best news we could have gotten.  We have accepted the fact that she needs surgery.  We know that she will need to be in the PICU and stay in the hospital for a week or so, but without her brain involvement, we feel much more comfortable with the surgery.

Without needing Dr. Greenes involvement, the surgery should be much sooner than we expected.  We will still need to have the blood drive as well, so I'm sure I will be getting those details nailed down within the next week or so.  Things are really starting to move forward more quickly than we anticipated.

So now we wait for that next phone call...(and pray that the radiologist read the MRI correctly!)